Project data are handled with the utmost discretion and are only accessible to the authorized staff who need the data to complete their duties within the scope of the research project. Generation, transmission, storage and analysis of health-related data and the storage of biological samples within this project strictly follow the current Swiss legal requirements for data protection and are performed according to the Swiss Ordinance on Clinical Trials in Human Research (ClinO), Art 5.
To safeguard your confidentiality, your data are coded. It means that your sensitive data are not directly linked to your identifiable data (name, email, address, date of birth, etc), but are associated to code numbers. In case of a publication in a scientific journal, the aggregated data will not be attributable to you as a person. Your name will never appear in an open or public document. Occasionally, scientific journals require the raw data. In this case, the individual data transmitted will always be coded and therefore it will not be possible to identify you as a person.
If you accepted the consent form for the reuse of your data, your health-related data and biological samples may subsequently be used in future research projects or sent for analysis to another biobank in Switzerland or abroad for use in other research projects. Any other biobank must comply with the same standards and requirements as the biobank of this project.
The project may be inspected by the ethics committee responsible for the initial examination and authorization of the project. In this case, the project investigator may need to communicate your data for the inspections.
You can find the information on confidentiality and data policy for German participants here.